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E39: Self Love & Systemic Lupus with Sybella

by DGWL
December 14th 2020
00:49:49
Description
Episode Notes: In this episode, Marcia speaks with Sybella on exploring self love with a new lupus diagnosis, navigating healthcare in the UK, dealing with anxiety, and falling in love with fitness. ... More
this is disabled girls who lift. We are reclaiming what's rightfully ours one podcast at a time, it's mary beth Chloe and Marcia bringing you the thoughts and unpopular topics to get you out of that. A bliss comfort zone. Okay, let's do this. Hello folks. This is another episode of disabled girls who lift. This is Marsha on Seminole tribe, Land from south florida. We're going across the pond to talk to Sabella from England and well we're gonna have a great conversation. She is a personal trainer, diagnosis lupus. Uh I believe she has a Youtube channel and we've got tons of stuff to talk about. Welcome Sabella. Hello. Hello. I'm sorry. I love how when people introduce people from England, I've got to say England, you have to can't help in England. I can't help it. Not blame television. Okay. No, I love it. So, I mean, let's just get to the diagnosis, get that over with.

All right, let's talk about that. The invisible illness which is very visible to people like us, Right, Quite apparent. Um Have you How has that journey been in the U. K. Because I have no idea how healthcare works. Was it cut and dry? Like one day you had a big sick boom. You did the test bam. You got lupus or was it years, how did that work out? Yeah, it's been it's been over a couple of years actually um from what I can remember, like I just remember growing up in or is experiencing joint pain, you know, and it was mostly around the coldest season, the colder months. Although some might argue that were always cold, we have a winter. Um so yeah, I always found that that was always a point where I would be excessive pain. So they would take blood tests and it would come back, you know, inconclusive, but there was signs of inflammation. So that was definitely um something that was always in my life.

But yeah, it took for it to be really bad before they were able to diagnose me with lupus. So in effect, it was a blessing. It got so bad because it was constantly like, this feeling of, is this actually happening? Like, nobody was telling me that I was making it up or anything like that thankfully, but I just felt like, is this in my head, but what, what is actually going on? We just need answers and you know, that's kind of that vicious cycle of am I making myself sick now from the threatening and and the stress of it all. So yeah, it was good to actually have a diagnosis in the end. That's I'm glad you share that because there are some things out there that are um, I mean, not quote unquote super rare diseases, right? And so they make you feel like if you go to the doctors and you don't have the obvious ones, like, oh well, I guess we'll just, I don't know, we'll wait and see like they make like, it's supposed to be like, sure we all not even all of us.

Many of us have heard about lupus or things like multiple sclerosis, you know, we hear about them. Yeah, when you show up and you don't obviously have it, you just feel like, okay, what else is it then? I don't know. Yeah. That somebody gave me answers. You're supposed to have the answers, but I'm being nice to me. There's actually so many different types of um, inflammatory arthritis or conditions. Yeah, I can only imagine. Yeah, it's probably pretty tricky to, like, hone it down. Um But yeah, so, yeah, so that's what you imagine. Imagine if you really had, like, a rare nobody, you know, you have to go to specific specialist to someone for you to get this diagnosis of lupus was hard enough. I can't I don't I don't have a name for my issue either. I still don't know what it is. Um yeah, I don't know. I've had, so that's why I asked, I don't know how UK goes. I've had several people tell me that it's all in my head.

I've had, it's like 50, 50 I've had doctors say, you'll just learn to get over it. Um You need to meditate. Um we're not gonna know what it is. So, you know, you just keep working on your own, we're not gonna be able to figure it out. Okay. So I've washed their hands with, basically just get over it. Like, nah, no, this is your job, Like, I'm a human being like, I need to know what's up, It's awful. That's truly, truly awful. Uh For me, my experience has been really positive. I don't know if it's just a particular hospital and the clinicians that I saw. Um but my experience has been really, really great. They were they did listen um to me and they were really enthusiastic about trying to figure out what's going on, You know, And I think when it got to the point of there was a clear visual signs to back up what was verbally telling them, they were like, okay, now this is this is this is really happy, We need to find out what's going on and the healthcare here is free.

So, I saw really blessed um thankful, and lucky that I have access to this free health care, but, you know, you can have a GPS that he doesn't want to hear, It can be really dismissive. I've heard the stories, I have experienced that in my childhood, but in my adult years, um this particular doctor was, no, he was very quick to respond, and they've just all been great. Really, I must say that my diagnosis was quite traumatic, but I don't really think it was traumatic because of them. I think it was just traumatic because it was like, oh, my gosh, I've got to die, you know, kind of, immediate feeling like, okay, but just being up, my life expectancy is quite short because there's obviously going to give you all the information as well, I've just got to let you know that you know this could happen and this could happen. You're like oh my God it's very to happen. It's not. It is. Yeah. Yeah. Yeah. Yeah just go immediately from 0 to 100.

Oh my God. Uh You look at the worst thing that can happen. Oh yeah. Yeah. Yeah. Yeah that was that was a bit of me that was but no they were very quick and they have continued to be that way. If anything I mentioned, I'm just like this hurts and this hurts now and you know they actually really do listen and take on board and make notes and tell me to get in touch with this person or they refer me to. Yeah. Honestly I mean I've moved cities now from where my actual hospital is and I don't even tell them I've moved because if you move you have to move to a different practice. Oh at least so I think so I've been like I can't do that because I'm afraid that where ago won't be as good, so sticking with them travel back to that city just to get you know a medical care that I've been receiving.

So it's worth it, you know I did the same, I don't blame you there. Uh A lot of people travel across the country especially when it comes to specialists in whatever, there's certain areas that you're just kind of S. O. L. So that's definitely a thing here too. Uh Is that what led you to become a personal trainer where you always active in general? Yeah, I was I was always pretty active, like I'm always, you know, doing something. Um often it was doing things, I wasn't supposed to be all that into activities. Um So now falling into fitness was I just felt like I stumbled into it actually. Um it was mainly due to a decrease in my mental health. Um I was like experiencing a lot of depression, a lot of anxiety, which was a new introduction to wildlife. And I just feel like with anxiety it's like, I don't know if you have this over there, but we've got something called Pringles Over here, it's a little tough off these crisp and the catch phrase is once you pop, you can't.

Oh yes, yes, yes, that's what I think anxiety anxiety is, it's like when you get it, you've got it. If you haven't had it before, you have no clue. You don't think it's, you don't think it's real, you can think it's a myth, but you get it, it's almost it's always going to rear its head in your life. That's my experience anyway. It's just always there, there's this undercurrent of anxiety, you know? Probably get today? Yeah. Something, Yeah, something's making me feel a little bit shifty. Am I going to have a panic attack, you know? Um so yeah, I was experiencing a lot of that one year and I just kept frequenting the gym and it just seemed like a natural progression really. The gym instructors there were just like, you know what you've got, you've got a knack for it, you're probably person empathic and yeah, so I just took it from there, became a personal trainer. I did feel like I was experiencing a lot of imposter syndrome because a lot of these and they've been doing this for years and then nursed me like hello trainer, but for me that's a work or more of a compassionate, why are compassionate and go like, oh I'm all about, how do you feel like how do you actually feel less?

Let's get into it, let's unpack that our session isn't just about the physical pumping iron. Yeah, talking about about, you know? Yeah, that's not me man, that's not me. I just like to connect with people and not lift people and, and share body positivity because it's not all about, you know, getting being skinny or get into that ideal weight, like what's going on in your head, you get your mind right? And then the rest will follow. So that's just pretty much my ethos. So yeah, it was definitely fitness first and then the lupus came next. Yeah, we changed things, it changed things a lot, but for the better really, because I feel like I have a new direction, a broader, a broader market, which is called called? Yeah, that is cool. And do you find yourself disclosing this lupus or do you keep it to yourself when it, when it comes to your clients or or just advertising your services in general? Um No man, I'm always I'm always going on about it. I don't believe this, you know, like I don't know like I'm okay with it, I'm definitely okay with it.

I do feel like sometimes like especially when I'm having a good day to kid myself into thinking I don't have it anymore. Doesn't like, can I tell people I have it? And then two days later it's back and I'm like, yeah, no, I definitely have it. So I think that's definitely um common with lupus, you feel so good, you can feel like you're fine and then the next day everything's wrong, you know, and then the day after you feel fine it's just, it's just really, really interesting um conditions to be honest. But yeah, no, I'm I'm very transparent about it and I think for me that's just a really positive thing and it's quite cathartic actually, it really helps me deal with it more, I think yeah, you get to be yourself, you don't have to pretend to be anything. You just, hello, this is me including lupus anyways.

What exercises are we doing today, like? Exactly. Exactly. And if anything it just attracts more like minded people, people who are going through their issue, know what I mean? And they thought okay I know I can I can go to this trainer and she's gonna understand me and my my issues what I've got going on, what's occurring for me. She's going to hold a safe space for me and that's what I think just being so open and you know transparent like that. It's welcoming. It's attractive. So I think I know that I definitely seek that out in other people anyway so I'm with you, I'm with you there. And does it change so your ups and downs does it change the way that you schedule or how do you do your work or your own training and juggling work? How does it girl? Yeah. Yeah I'm still working it out to be honest because um I was only die place with lupus this year and he only got really bad around like this is brand new.

Had to yeah. Brand spanking new to me. I know. Yeah. And then and then Covid hit so it was already toying with the idea of maybe I can't do my job anymore and it really put me into a really um downward head space for a while but when lockdown happened it was almost like I was forced into being in a cocoon anyway I was forced to spend time with myself and adjust and heal and come to terms with and adapt and think about ways that I can make this work? So yeah, I've had time to really think about it and you know that I'm getting and feeling a lot better. I don't think it's a hindrance for my job role and it's it's pretty much what other people have been telling me anyway, is that they wouldn't see my my, you know, lack of ability to demonstrate certain exercises, especially from having a flare up.

It's more about that motivation, but for me as a trainer, as, you know, a somewhat perfectionist and just enjoy my job in general, I want to demonstrate I want to get involved, so want to be there for my client and let them know, you know, it's ok in different ways to do an exercise because there's only so many ways that you can explain how to do some deep verbally without the use of a visual demonstration. You know, there's a lot of visual learners out there. I know I'm a visual learner, it's just adapting my teaching method, being kind to myself and allow myself to experience what I'm experiencing in those moments, especially as you say with my own training. Um you know, there's a lot of times I can't do what I could do before and I really swallow that hell yeah, just be like, okay, this is where I'm at right now, like it's okay, Okay. Yeah, definitely been there and in terms of um you said there was a lockdown, but isn't there another one happening or We're in Lockdown 2.0, Okay.

Yeah, we'll probably be there eventually. We'll find out. My goodness. Isn't that so, so your gym reopened and then now it's closed again anyway, I'm guessing. Yeah. What a mess. The response in America for sure. It's been trashed. So I thought everybody else had it together because that's what, you know, folks make it seem like it's just America. So what, what happened in the UK, were they not really like protecting folks or All right. You know what? I don't really follow the news so I can't really say exactly what's been happening. Like I like to, you know, pretty much rely on hearsay. Like news is going to get to you no matter what? Oh, yeah, yeah. I don't follow it much either. Exactly. Especially for elections. Like I just follow memes. The memes will tell me your grandparents are going to tell you, someone's going to inform you.

So it's going to reach me eventually. But obviously I've lived through it. So my experience is from what I know, is that a lot of people just questioned how we, um, lifted the lockdown where we ready? How do we responses from when they found out that there was this super hyper contagious virus going around. But did we respond to lay and we were still letting people in the country and um, yeah, just the rapid spread of this virus and and how it was dealt with really and just the lifting of the lockdown and then the different stages of the lifting of the lockdown and the different stages of reintroducing like the lockdown now the lockdown and it's just like what on earth is going on? I haven't you follow what I'm just try and do as I'm told you know.

Oh gosh yeah that's it's pretty wild. Um And so how does that change how you can get your your actual health care then? Um Because I know for me most of my specialist or whatever is like online only but then if you need to see someone for the first time they want to see you in person. So I've been like kind of out of luck and that. Yeah. Yeah it's pretty much the same here if it's just like check up I'm just to basically see how I'm doing and just you know quarterly um you know just check in with me it's over the phone. Um If I'm expressing um I need to see someone in person they will push you forward if they deem it necessary recently I've had a treatment on one of my shoulders because it was frozen um and they needed to give me a steroid injection.

So obviously I had to had to see them and but they did delay it because I was at risk of catching covid more because I've had an invasive even though I think the needle really like how invasive is the needle. Come on. Yeah. I mean if they're considering the travel the risk then okay. Maybe. But the needles guys come on a mouse that's bigger than the whole you're sure it's fine. Fine man. Just give me the damn injection. But yes so they are very um stringent on who they see when. Yeah that hasn't hasn't saved me too much. Mm. No that's it. That's good to hear isn't anything dire but the frozen shoulder. So when you have joint issues is it like purely orthopedic like oh I just lifted too much or I did this wrong or is it usually it's a lupus thing. I think I've learned now to be able to tell the difference between delayed onset muscle soreness.

Which is what you're talking about is called dom's I thought like all over here anyway where you've been lifting something. Yeah and then your muscles hurt. Um And I can I can tell the difference between lupus now but like I say it's been it's been very new so it's been um yeah just kind of learning as I go but with the shoulder that was pretty much the first niggle but I had this time last year actually it started in my shoulder and I was like shoulders hurt but and I would explain it to people like it hurt him but it's like it's moving around and it always sounded like one day it hurts at the front and then it will hurt at the black, then it will hurt on the side. And I'm like, I can't understand what's going on. I literally felt like I was going crazy and it was just, I do believe and they ended up believing that it was the movie person, but he hit me so bad one day, like, suddenly I was in the most dream pain, like I was screaming and they thought I dislocated it because I was in that much pain all of a sudden they were like, okay, this is before the diagnosis, like sophisticated that you're showing signs of dislocation with what you're saying hurts and how it's feeling mara.

So it took them until after my diagnosis to go, okay, we believe that this holds his shoulder was probably caused by your lupus, but we don't know because, you know, there's not a lot of research with lupus, it is still quite so I just pretty myself diagnosed, I was like, I feel like I've got frozen shoulder and eric I don't know if that was not right here, guys, I have a dislocated my shoulder, it's contracted, it's not this, I feel like it's freezing like, I feel like I just don't, I don't know man saying. And I said, honestly, I could tell, I think your subconscious can actually tell you what's wrong with your body or unless it's a self feeling. How do you say it? No, a self fulfilling prophecy prophecy. It happens then it happens. I don't know if it's that. I just feel like I always seem to know what's wrong with me. My body seems to tell me and I'm like, that's what's going on.

I can just tell, Yeah, it's a skill though, for sure. And the way that that happens, it's out of nowhere or is it at all related to things you're actually doing? I feel like it's out of nowhere. I think there's also that tendency to say, okay, because you're involved in fitness, you're over using your joint. Oh yeah, people love saying that to me. You're over using too much. Yeah, you're doing too much. You need to chill out. You're like, come on now. Well, well, what is it like? I think, I feel like, um, people who are involved in sports, um, fitness or what not, that you are more susceptible to certain types of injuries. It's going to happen. Something's going to happen. You're going to get a little nick, you're going to get a little dis or a little bit of that. You know, something is going to be a, um, so yeah, I don't know, it just happened. It just happened that I don't, yeah. So I don't even really realize that that could be a part of lupus, some aggravating huge a level of pain and a joint.

I didn't even know that at all. Um, yeah, most I know about it is like, you know, skin issues or um like son you can't deal with the sun too much and I know about like the organ part of it, but I didn't know joint pain was in there too. Yeah, so there's different types of lupus. Um They can develop into one another so you know minus minus. Yeah I know the joy. It's the interest with, you know um It can so with minor systemic lupus um M. S. Emphasis. I don't know if I ever say that last bit right. It sounds like I think that uh I don't know. But yeah, that's more to do with my joint tissue being attacked by my own new system. So the pain is unreal. It's really quite it's really quite spectacular to say the least. Yeah. Do you have nerve pain also? I do get a nerve pain and that's something that I had to pretty much self diagnosed.

Yeah. Like feeling um tingling sensations or just my muscles kind of hurting but not in a fitness way. Tell the different, just sum things up. Yeah. Something's not right. You just no, no, I'm with you there. I'm still in that bubble of what is that? Um I think the only difference for me has been that already have a background in movement. I'm a physical therapist or you guys call physiotherapy. So you know like to me I have the direct idea like I'm like all right. I know I did deadliest yesterday, but that has nothing to do with my elbow. Why does my elbow feel like this? You know, like I could have had an easier time figuring that out, but when it comes to the lab work or, you know, everything on paper ship and well, everything here is normal, aren't you happy? Look, everything says it's normal, man. That's some bullsh it because like you say, you you are self aware, like you're, you're aware of your body anyway.

And I think that definitely a win for being active. Somebody who's, you know, very physically active or, you know, understand anatomy and understands body and how it moves and this that and the other you just, you know, and I think you can go to them and be like, look, this is what I'm experiencing or not, just walk in off the street going, I don't know, I'm just hurting. I'm not coming up, I'm not coming at you vague. Yeah, a professional. Yeah, I have a professional. This is what's happening now. You do the lab work. Like you say, like, this is your job. You have to find out this should be exciting for you because you're like, okay, I've got a case that I need to delve more into and it's just really, it's so sad that that is the case in this is why I feel just really, really less unfortunate that that hasn't been the case for me and I'm just still really rubbish that other people aren't getting that treatment.

Yeah. Yeah, that's pretty rough. Are you connected with like disabled community or lupus folks or anything like that in your area? Do you know um in person? No, but um in on media. Yes. Like on facebook and part of a lupus group, which actually has been so freaking incredible. Like when I was diagnosed I did all my research, which I think is really important to anybody who is um, you know, being told they've got a condition through your research. Don't fixate and don't I wouldn't say I wouldn't encourage people to bed, you know, dramatically changed their diet. But do your research find out as much as she can about this new introduction to your life, this new title. You know? How long has it been around? What are other people's experiences? What foods are you know, you're supposed to avoid with the lupus supposed to avoid our FIFA.

Like you know those tiny little grass basically shrub? Yeah, probably like poison like it's supposed to be do not eat our fight for life. I think that so yeah, really interested. Um So yeah, just going on these groups and just being like this is what I'm experiencing today as anybody else experiencing it or just, you know, share their story or they just want encouragement. They just want people to talk to and yeah, it's been amazing. Really amazing. That's awesome. And is lupus one of those things? I'm guessing it is but one of those things where you have one, you'll have something else because it seems to be the case in general for a lot of these auto immune disorders. You know, you have this autonomy a then you probably have this too, or you know, like, it's like, just start packing them on quite likely.

I definitely think so because yeah, like you say inflammatory conditions, they affect your body as a whole. You know, often resides in the gut and it just can be allowed into many different facets of your body and your mind as well for me, or as far as I'm aware, well, I've got is systemic lupus and I get carpal tunnel in my fingers. Um that's it for me. Hopefully I should hope so. Has it changed the way that you view your body? Or you know, like, I'm sure you might have had skin changes or you might be, you know, bloated or something more than usual. Has it changed the way you look at yourself? Do you know what it really has for the better for the better. I think at the start I felt really confused and just like I was living in a dream, like, how can I be, although, you know, I was experiencing issues for a long time before the diagnosis book when you're told something, he just have this sudden feeling of?

Well, but I was fine. What do you mean? I was fine. How is that? So, what am I now part of a special community? Right, hold on, my life has changed. Pull the brakes that, you know, anything is like, I consider, like, the way my condition has developed and the way I've responded to many patients, quite lucky, it could be way worse. You know, it could be way worse. So many different levels, so many different things. You know, there's so many different ways to, you know, be terminally ill or have, you know, losing them and what not. There's always something worse. But still, no matter what it is, you just feel like I don't understand. And for a while, and then once I got over that, which is pretty quick, um I just turned inwards. I think for me, I had to really turn inwards and diet. I love you as you are.

Because are you tired? Mhm. I'm glitch ng a glitch in the makeup of Sabella to Bella's body. My mechanism is still working so freaking hard to keep me alive. Keep you bring blinking to keep me breathing to keep me seeing and touching and feeling and, you know, there's so much more positive that's going on with my body than this glitch, you know, and it's so, it's so easy to, it's just like pain, you know, often you feel your pain so much, but you don't notice when it's gone, you hear and you don't notice that moment. Yeah, yeah. You're not until something else happens, then your mind will focus on the other pain that you feel like, oh, oh, but when but others think it's gone. So it's so easy to focus on pain and negative than all the positive and that's what it's really been teaching me.

So it's definitely a lesson for me too. Embody positivity, body positivity, which is, you know how I feel like I've kind of fallen into this movement a lot stronger than I probably would have been post pre lupus right? Right now I'm with you. And it's not even to be like, oh, good vibes only? Or like live level. It's like, this sucks over here, but hold on, there's still some stuff over here. That's actually pretty good. Yes, of course, of course, we still have a days. I still have my moments. I still cry. I still think, you know why? Why? Why? But I'm not exempt. Nobody is exempt from the trials and tribulations of life. So a lot of people have what I'm experiencing at a lot younger age. So I'm doing all right, because I got it in my 30s, I guess, you know?

Yeah. And so what do you do for yourself on the, on the bad days, on the bad days, man, just some serious self care and self love. Self kindness. Self preservation, reminding myself that I'm worthy of all of those things I'm deserving of all of those things going for a walk. Nature just really simplifies things for me. You know, really? It does. And self massaging. That is a really beautiful, wonderful thing. It's cleansing the body of toxins. It's increasing the blood flow. It's you're just nurturing yourself, especially from experiencing pain or nurture that area with love. Just send that, send positivity to that area. It's not my jacket isn't just gonna be like, you know, you're telling yourself I'm gonna be all right, I'm gonna be okay. Just like Yeah, no, I like that.

Do you have any any like go to tools or whatever? Like I have like a back massage or you know, have like my fairy cain, Do you have anything that you can always grab? Um Now, just some good quality oil, man, that's a little bit of frankincense in there. Got a rick, whatever like these grounding, you know, like sensory overload is really important. Well epsom salts, magnesia insults, but now I don't usually use tools, always fire them, Get well into it and then they end up under my bed. Yeah. Uh huh. No, I don't know what to do. Yeah, I do use a foam roller. Yeah. Yeah, you've got those. Yeah. You call them from rolling over there. Yeah, we come from rollers. Yeah, that is, that is the ship. That is that is good. I love it. Yeah. I also have a vibration plate.

I stand on sometimes. It actually helps me too. Oh, What The Giant 1? No, like a cheap one from amazon, Like an $80.01 from amazon, what I look like? No, I think I have giant vibration plate money. Oh man. Okay. Yeah, Once, once they good. Are they? Uh Yeah, if you have a lot of spasms sometimes that can kind of bring them down. That's what I used it for. More, more than anything. Is the spasms. Okay. Wait, that's good. That's good tonight. My new job. So what's the um so for me, for the nerve pain, the only thing that helps me is like acupuncture and then my vein. So my cannabis, what's the cannabis situation in UK? How does that go? Do people even have that medically legal or illegal period? I don't know. Even, I don't know. I know CBB is like everywhere you can get CBD in toothpaste and shampoo and you do what you want.

Cbc everyone. Oh my gosh, somebody's capitalizing off that in there. Um with cannabis. I don't think it is legal. I think they've been talking about it. I don't know if you can get it medically or not. I've got no clue. Yeah. And then, and then any of the alternative stuff like the acupuncture is and uh um I don't know, I erratic stuff, you know, like the other, not the, not traditional medicines. Is that big over there? Um Yes, for sure. I think he just kind of pretty much gonna be that way inclined to want to try it, you know, I think I've tried acupuncture in the past. It's definitely something I would look into doing again. Um And I'm all for my potions as well, like I love my teas, I'll try anything. Anything. You've got to go back to nature really, don't you? You gotta have you gotta do your best to have as much whole foods as much as much untempered with food as she can in your diet.

Like how can it be wrong when it can't on the earth? Uh And it's a little easier to figure out what's what's what's working and what's not because you know what it is like it's just all right, there's a carrot, that's all it is, It's a carrot. Alright, great. Nothing figures like carrot. Yeah, but I don't do any of those. Do you get into like the strict restrictive diets and protocols? Um Over here, there's a bunch of them that people are like um like number one gluten free everywhere, right? Everybody says gluten free. And then the number two, when I hear something called the auto immune protocol or something like that. Auto immune ai p auto immune something protocol. I don't know. And it's so it's like no beans. No, this no nuts. No, this no, that no peppers, like no, like this just a list. Yeah, that's probably stemmed from doctor, I think you're saying Chevy or something like that. Maybe. Maybe I know um that he was supposed to be a bit of a guru when it came to healing lupus and other inflammatory conditions.

So it's probably come from that. Yeah, there are some really dramatic and diets that you can try or like um, you know, maybe doing animals and coffee enemies and um for me, I know that sugar is a major catalyst for a lot of islam, a torrey conditions and sugar is my one and only vice. I love it. It's bad for me. I can't help it. Yeah, help it. It if I did, I'd probably be watched better. But yeah, I don't know. I think, I think if it works for that person or good, but everybody's body is different. It's not gonna work for every everyone. I do think that having a more of a green, more of an alkaline diet is definitely a win, definitely a positive thing to have a lot more greens on your plate.

That's good for the body. If your body is a siddiq, which most people's bodies are and it's so hard to not make your body accidents. Um, having an athletic body is not good for your body, having a more alkaline body is definitely more positive. We could always use more veggies. That's for sure. That's for sure. Yeah, I think that's the biggest point though is that I have, I have a serious problem with somebody. Like if you want to say, hey, I've done this and it works for me, Maybe you should try, you know, like I might tell somebody, oh, I've used acupuncture for this. Maybe if you have a nearby, you could try it, but I'm not going to send you a message just like, this is gonna cure you if you do it and you have to follow it, I'm like, hmm, no, no, no, no, I'm going to do it now because yeah, so you want to do it less, I'm gonna repel what you've said and I'll do it in my own time. Thank you know, but like, I'll probably end up trying it when uh yeah, no, I'm not all for like, you know, preaching or saying that this is what you need and that's gonna definitely work for you because it's not, you've got to be, it's got to be somebody's intention, somebody's own decision and they have to be mentally invested because it's about what's going on in your head as well, you know?

Um that's my viewpoint on it. But yeah, there are definitely, certain things, people know people have that innate feeling inside, they know if I eat this, probably not going to be any good for me. Yeah, there will be. So, I mean, there are things that are supposedly more inflammatory, right? So like being for example, and if I'm feeling bad and I see a plate of beans, my body will tell me like, yo chu it will tell me and I've learned from those times when I looked at it. Like I don't really feel like eating it, but I ate it that day and I didn't feel, you know, and that's my childhood. Like I'm from the, you know, my family's from the caribbean, we eat beans. So for somebody to tell me like, oh you should never be eating them like that's my whole life. Uh But if I pay attention to my body, it will tell me like, you know what, like you really want some broccoli right now. Okay. Yeah, let's go get let's get the broccoli, like those those signals are there, but you just have to pay attention exactly those signals they are there.

And it's it's tough if you're somebody is vegan as well. Yeah, your selection is a little different. Yeah. Because you go to beans for protein, that's a protein or oh yeah, begins as well. They're like, oh, don't have legumes if you've got losers. Well what kinda have what kind of stop it, Stop cutting my diet now. I just eat what I want. What I know for myself is, right? And like you said listen to the signals. If you if you know that it's no good then just don't have it. If you saw like happening after damn food man, it's honestly the stress the stress that you created about whether or not you should eat it, you might as well just does exactly. Oh my gosh, seriously. Um so usually we record for like an hour or so, but I'd like to know what more about where you're from or your family's from.

What's that about? Because you said you're living in Birmingham but not actually from Birmingham. I was just recently moved in with my mom actually. Um I mean him and that's been really great because I'm hoping to save some money, my property. But yeah, I was always moved around a lot. When I was younger, my mom moved a lot. She had a reason and so that, you know, I feel like I adopted that habit into my life. Yes, only me only, I was affected by this. Um my brothers, my siblings, they are very much homebodies. They have been in one place, one place only. Pretty much their whole lives that many have moved Around England. I then moved abroad. I've lived in Australia five years. I lived in New Zealand a year I spent months in brazil traveled Southeast Asia all by myself.

So I've lived out of the cave. I think it was like six years before I came back two years ago. I am Yeah, I just laughed. I love, I'm an explorer. I think if back in an older life or something that's probably what I did as well. It explore expedition seek out new land, see what's going on. Yeah, I'm not really from anywhere that's pretty much what I tell people. It's very, you know from anywhere from anywhere you want on earth. I don't know from the universe. Galaxy just sprinkled from the skies. You know what I mean? That's a good one. Leave them with that and they just feel so like because after me uh that's hilarious. Oh my gosh! I mean I'd love to have you back on because we have so many things that we could unpack and explore and talk about and but for now what would you what would you like to leave?

A bit a little nugget, a little nugget of advice or something that you've learned in your and your fitness and your lupus journey that you'd like to share. Um I don't know. Just be kind to be kind to yourself and what people are experiencing. What I'm experiencing is is real for me. But there's just so much more than my condition. I'm more than my condition. My condition isn't me. You know, I'm just redefining, reinventing myself is really important and be willing to do that as well and be willing to let go of an idea of who I thought I was. I think learning to detach from an identity can be the most painful thing to do. And I just encourage people just to be a bit more like fluid, bit more malleable with who they perceive themselves to be and who they choose to be around other people.

I don't know. I don't know what I'm trying to say here. No, I'm good, I got you. I picked I'm picking up what you put down. Yeah, yeah. Different sides of yourself. Your deep, you're very deep, there's levels and there's so many different levels, you don't have to be a certain type of you every day, like, it's ok. Yeah. And they're not okay. Yeah. If I sit on the couch for a week, like, that's alright. I'm still I'm still a power lister, but it left anything that week out here. Absolutely, absolutely, absolutely changed, definitely. Yeah, that's a key point as well. I would always chastise myself being lazy. I want to stay in bed today, but I'm lazy and No, I'm not, I'm just having a bad day, like, your wisdom, So good. Exactly. Oh my goodness. Well, where can everybody find you on the internet?

They can find me on instagram Sabella dot Davis for my body positivity for my fitness training and self care and all that good stuff. They can also finally on Youtube at simply Sabella. So it's pretty much more of the same stuff, but more honed into self care and hair. My hair journey. My natural hair journey seems to be popular or more about, which is not the direction of what if we go in, but you know, give the people what they want and Yeah, so that's what people can find me lovely. All right, well, you guys know what to do. Find her on everything and stay tuned for whenever we have it back, it'll happen. Have me back please. Disabled girls out. Thanks for listening to disabled girls who left. We appreciate all of your support and everyone who's taken the time to show us some love.

Don't forget to subscribe, rate already, review of our channel. We're on Apple podcasts, Spotify player, FM, google podcasts and more. You can also find us on instagram at disabled girls who left.

E39: Self Love & Systemic Lupus with Sybella
E39: Self Love & Systemic Lupus with Sybella
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